Resource library

Submitted by Paul Decle on Sat, 17/09/2011

Resources can be sorted by clicking on the table headings below.

Category	Thumbnail	Title	Description	Author	Publisher
Mother-to-child transmission	Download [26 Kb]	GP/health visitor BCG letter	This document is a standardised letter to inform GP's and health visitors when a baby is confirmed HIV uninfected and should therefore receive their BCG immunisation. It includes a return slip to be filed in the child's notes. Free	Le Prevost Marthe and Williams Amanda	Local guideline
Health follow-up	Download [26 Kb]	Flu vaccination reminder letter	This document is a standardised letter to be sent from clinic to parents and GPs to inform them / remind them of the importance of getting a flu vaccination. Free	St Mary's family clinic	Local guideline
Young carers	Download [195 Kb]	Supporting young carers in families with HIV	This document gives information for professionals working with families with HIV to help them identify and then access support and information for young carers. Free	The Children's Society 2008	The Children's Society 2008
Guidance for service development	Download [106 Kb]	Report form the residential weekend run in July 2007	This report details the process of setting up a residential weekend, the format and the activities of the workshops, it sets out some of the information gathered and assesses how feasible it would be to run such an event in the future. Free	Conway, Magda	The Children and Young People's Network, 2008
Parent information leaflet	Download [53 Kb]	Who should I tell and why?	This parent information leaflet is for the parents/careers of new children and young people to the clinic. It looks at professionals involved in children's care and discusses which professionals will be informed of children's diagnosis, who parents are advised to inform, and who does not need to be informed. Free	Hobbs, Jackie	Local guideline
Parent information leaflet	Download [43 Kb]	Follow up for babies born to mothers with HIV infection	This parent information leaflet is for HIV positive women. It explains the basics of HIV care in pregnancy, at delivery and birth, and the bloods tests and follow up babies receive. Free	Hobbs, Jackie	Local guideline
Clinic form Adherence	Download [37 Kb]	Directly observed therapy (DOT) form	This form is for professionals to use when carrying out directly observed therapy (DOT) of antiretrovirals on children and young people either in the community or in hospital. The form is a template to record information over the course of a week on the medication taken, the time, the dose and to see if appropriate storage and dietary instructions are followed. Free	Clapson, Margaret	Local guideline
Clinic form Transition	Download [28 Kb]	Transfer document from paediatrics to adults	This form provides a template for professionals to share of information when transferring a patient from paediatric to adult services. Free	Clapson, Margaret	Local guideline
Explanation tools:post-naming		What's up with Matt? Medikidz explain HIV	This colourful comic is aimed at young people who are aware of their HIV diagnosis. The comic is based on a group of space-dwelling characters called the Medikidz who live on Mediland. They take a young man Matt on an exploration of his body to explain how the immune system works to fight infection, how HIV affects the immune system and how antiretrovirals work. £6.99	Chilman-Blair Dr Kim Taddeo, John	Medikidz 2009 Order online direct
Guidance for service development	Download [564 Kb]	Developing support services for children, young people and families living with HIV	Offers information, guidance and support to those developing support services for this group of children and young people including voluntary and community sector organisations, as well as social workers, health professionals and youth workers Free	Conway, Magda	NCB National Children's Bureau 2006
Explanation tools: pre-naming		Sam's science I know how we fight germs	This book aimed at children aged 5-8 describes how our bodies fight germs. It is an introduction the immune system and has lots of helpful illustrations.£4.99	Rowan, Kate illustrated by McEwen, Katharine	Walker Books 2000 Order online direct
Testing	Download [97 Kb]	Don't forget the children: guidance for the HIV testing of children with HIV-positive parents	This guidance was developed through a national conference held by BHIVA, BASHH and CHIVA in 2008. It describes issues relating to untested children of HIV-positive parents including parents experiences, law, current practice examples, and practical ways to move forward. Free	Wood, Dr Christopher Conway, Magda	CHIVA 2009 View online
Guidance for schools	Download [97 Kb]	HIV in schools: a pack designed for teaching about HIV at key stages 3 and 4	This pack contains lesson plans to present HIV in all areas of the curriculum, from world AIDS day events, to geography, SRE and design classes. All plans are based within the national curriculum and set out the learning outcomes each activity will meet.	N.A	N.A
Explanation tool: pre-naming		Your body, your blood	These simple worksheets are about the immune system for infected and/or affected young children. Five worksheets are included in each pack and explore the following topics; your body, your blood, inside your blood, the blood factory, the germ fighters and taking medicine.£2.50p + £2.50 pp	CWAC	CWAC Order online direct
Young people information leaflet		Voices of young people	A learning resource that follows on from the very successful 'Voices of children'. Voices of young people has been compiled from a range of stories, pictures and quotes in which young people in the UK have described their experiences of living with HIV. £3.50 + 80p pp	CWAC	CWAC Order online direct
Parent information leaflet		Talking with children about illness and HIV	This booklet is written for parents and carers of children in families where someone has HIV. It is based on real questions that parents and children have asked about HIV. Suggestions and practical ideas are set out in sections on why, who, what and how to talk to children about HIV. £2.50 + £1.50 pp	CWAC	CWAC Order online direct
Health complications	Download [97 Kb]	Child with HIV and respiratory illness, The	This CHIVA Health guideline is designed to assist health care professionals to assess and treat a child with HIV if they present with a respiratory illness. Free	Riordan, Andrew	CHIVA 2007 View online
Health complications	Download [65 Kb	Child with HIV and gastroenteritis, The	This CHIVA Health guideline is designed to assist health care professionals to assess and treat a child with HIV if they present with gastroenteritis. Free	Riordan, Andrew	CHIVA 2007 View online
Health complications	Download [50 Kb]	Child with HIV and a fever, The	This CHIVA Health guideline is designed to assist health care professionals to assess and treat a child with HIV if they present with a fever. Free	Riordan, Andrew	CHIVA 2007 View online
Adherence	Download [62 Kb]	Pill swallowing protocol	This guideline is to assist healthcare professionals to teach children how to swallow pills. Adherence to ART can be affected if children are having to take large quantities of unpalatable liquids. This step-by-step guideline aims to help children move onto pills in an attempt to help their adherence. Free	Hamadache, Djamel (based on original by Stephen Head)	CHIVA 2009 View online
Health complications	Download [315 Kb]	Treating opportunistic infections in HIV-infected children	This comprehensive guideline reflects current recommendations on treatment of opportunistic infections that are common to HIV infected infants, children and adolescents in the UK. Free	Chakraborty, Rana Shingadia, Delane	CHIVA 2009 View online
Disclosure	Download [384 Kb]	Talking to children about their health and HIV diagnosis	This guidance is aimed at health care teams involved in the care of children and young people living with HIV in the UK. It provides evidence of good practice and practical ideas to enhance children's knowledge about their health and diagnosis. Free	Melvin, Diane Donaghy, Sheila Conway, Magda	CHIVA 2009 View online
Mother-to-child transmission	Download [109 Kb]	Recommended perinatal care	This guideline outlines recommendations for the prevention of mother-to-child transmission that have been made from the audit Perinatal transmission of HIV in England 2002-2005, NSHPC, AIAU and Children's HIV Association collaboration, October 2007. During the care of a pregnant woman and her baby BHIVA pregnancy guidelines should be followed. Free	NSHPC AIAU CHIVA	CHIVA 2009 View online
Post-exposure prophylaxis	Download [135 Kb]	Post-exposure prophylaxis (PEP) guidelines for children and adolescents exposed to blood-borne viruses	This guideline sets out the risks, investigations, management and follow-up required for children exposed to blood-borne viruses (Hepatitis B Hepatitis C and HIV). It includes examples of exposure and recommendations of practice in low, moderate and high risk cases. Free	Tudor-Williams, Gareth Hamadache, Djamel Foster, Caroline	CHIVA 2009 View online
Developmental monitoring	Download [94 Kb]	Neurological & functional outcomes in paediatric HIV infection: a multidisciplinary approach for monitoring progress	This guideline looks at the evidence of neurological and functional outcomes from the paediatric HIV population highlighting the need for developmental monitoring to allow early detection of any weaknesses. It also outlines the ethos and aims of developmental care, setting out guidelines for developmental monitoring along with information on clinical outcomes and parental feedback. Free	Melvin, Diane Biggs, Rebecca	CHIVA 2009 View online
Guidance for schools	Download [123 Kb]	HIV in schools: good practice guide to supporting children infected or affected by HIV	This guidance sets out schools' responsibilities towards children affected and infected by HIV. It includes advice on first aid, confidentiality, discrimination law and creating a supportive environment and presents both good and bad case studies. Free	Conway, Magda	NCB National Children's BureauChildren and Young People HIV Network
Testing	Download [113 Kb]	HIV testing guidelines for children of confirmed or suspected HIV positive parents	This guideline highlights the importance of testing children of HIV positive parents. It looks at the complex issues of consent and parental refusal and outlines timeframes and procedures for testing. Free	Hamadache, Djamel	CHIVA 2009 View online
Transition	Download [84 Kb]	Growing up, gaining independence principles for transition of HIV care	This guideline describes the process for the transition from paediatric to adult care for young people with HIV. This process of preparation begins in middle childhood and progresses through adolescence at a speed appropriate for each child and their family. Free	Lyall, Hermione	CHIVA 2008 View online
Testing	Download [60 Kb]	Baseline investigations for children with suspected HIV	This guideline lists the baseline history, examination and investigations that are recommended for children with suspected HIV infection. Free	Lyall, Hermione	CHIVA 2009 View online
Treatment	Download [60 Kb]	Baseline investigations for an infant/child known to have HIV and about to start on ART	This guideline lists the recommended baseline investigations to carry out before starting an infant / child on ART. Free	Lyall, Hermione	CHIVA 2009 View online
Mother-to-child transmission	Download [433 Kb]	British HIV Association and Children's HIV Association guidelines for the management of HIV infection in pregnant women 2008	These comprehensive joint BHIVA and CHIVA recommendations set out the management of HIV infection in pregnant women. It includes sections on: scenarios, UK prevalence, antenatal testing, preconception and fertility, sexual health, psycho-social issues, VL and resistance, HIV related complications, ART efficacy, toxicity and pharmakokinetics, obstetric management, HIV 2, Hepatitis B and C co-infection, management of infants and infant feeding. Free	BHIVA CHIVA	BHIVA 2008 View online
Testing	Download [405 Kb]	UK National guidelines for HIV testing 2008	These guidelines are intended to facilitate an increase in HIV testing in all healthcare settings in order to reduce the proportion of individuals with undiagnosed HIV infection, with the aim of benefiting both individual and public health.These guidelines provide the information needed to enable any clinician to perform an HIV test within good clinical practice and encourage 'normalisation' of HIV testing.	BHIVA BASHH BIA	BHIVA British HIV Association
Standard of care	Download [187 Kb]	CHIVA standards of care for infants, children, and young people with HIV (including infants born to mothers with HIV)	The CHIVA standards of care set out the appropriate service provision for infants, children and young people with HIV (including infants born to mothers with HIV). It maps out: appropriate pathways of care, multidisciplinary working and the role of the Children's HIV National Network. Free	Lyall, Hermione Riordan, Andrew Williams, Amanda	CHIVA 2009 View online
Mother-to-child transmission	Download [479 Kb]	HIV, pregnancy and women's health	This guide is written for women with HIV and aims to help them get the most out of their HIV treatment and care if they are considering pregnancy or already pregnant. It has sections on: planning your pregnancy; HIV treatment when pregnant; important monitoring tests, stopping your baby getting HIV and after baby is born. Free	Clayden, Polly	I-Base 2009 Order online direct
Standard of care	Download [652 Kb]	Recommended standards for NHS HIV services	These recommended standards are the result of a major project managed by MedFASH. During their development, they benefited from the involvement of a wide range of organisations and individuals. Whos contribution enabled MedFLASH to produce recommended standards which are broadly supported by those providing, commissioning and using HIV services. Free	Department of Health PACT BHIVA	MEDFASH Order online direct
Research	Visit site	Children caring for parents with HIV	This book sets out the findings from a piece of research focusing on the experiences and perspectives of children and young people who care for a parent with HIV in Tanzania and the UK. It examines the relationships between children and caring in the global context of HIV, offering insight into this little known area of children's lives. £18.74	Evans, Ruth Becker, Saul	Policy Press 2009 Order online direct
Looked after children	Download [462 Kb]	Looking after HIV: considering the needs of HIV positive looked after children	This report considers how the needs of these children are understood and responded to by the professionals involved with their care as looked after children. A number of cases were considered in the research, reflecting HIV positive children and young people looked after in foster care placements and residential children's homes. The research includes the experiences of unaccompanied asylum seeking children. Free	Ely, Amanda	National Children's Bureau 2008 Order online direct
Asylum and immigration	Download [247 Kb	Children, HIV, asylum and immigration	This document offers a snap shot of the situation for children and families living with HIV and insecure immigration status in 2006. It sets out then-current data and legislation, focusing on issues such as the children's experience of accessing NHS care the immigration system. Free	Conway, Magda	National Children's Bureau 2006 Order online direct
Looked after children	Download [192 Kb]	Guidelines for the testing of looked after children who are at risk of a blood-borne infect	This practice note for social care and children's health care workers sets out multi-agency guidance to address the health needs of looked after children who could be at risk of blood-borne infections. It provides information on the blood-borne infections (Hepatitis B, Hepatitis C, HIV and syphilis) and the procedures for how to identify, access, test and refer children at risk of these infections. It also gives guidelines on consent and confidentiality in relation to this issue. Free	Le Prevost, Marthe and Williams, Amanda with contributions from the BAAF/CHIVA/NCB working party	CHIVA 2008 View online
Explanation tool: pre-naming	Visit site	Me, my health and my medicines	This is an interactive workbook for primary school aged children in health care settings. This workbook aims to improve medication adherence by encouraging children to participate in their own health care. The resource includes detachable worksheets and charts to illustrate a child's well being. £8.50 inc pp	Miah, Jenny Melvin, Diane	CWAC 2009
Treatment and monitoring	Download [444Kb]	Potential interactions between antiviral treatment for swine flu	This chart was produced during the swine flu pandemic to show the predicted interactions between the influenza antivirals and anti-HIV drugs based on their routes of metabolism. Free	Liverpool, University of	University of Liverpool 2009
Treatment and monitoring	Download [1.2 Mb]	PENTA 2009 guidelines for the use of antiretroviral therapy in paediatric HIV-1 infection	These updated PENTA guidelines draw on new evidence and development in paediatric and adult literature and guidelines. They aim to provide a practical summary of recommendations for treating children with HIV-1 infection. Free	PENTA	HIV Medicine 2009
Health Follow Up	Download [60 Kb]	Algorithm for treatment of paediatric dyslipidaemia	This pathway provides health care professionals with screening recommendations for the management of dyslipidaemia in HIV infected children. It sets out to help health care professionals to identify children at increased risk of premature CVD. Free	Lanigan, Julia	CHIVA 2009 View online
Adherence		Protocol to enhance adherence	This protocol can be used as a framework for planning, starting and maintaining adherence to combination anti-retroviral therapies for children with HIV. It is designed to help assess readiness for starting therapies and for planning on-going support for children on treatments. It can also be used as part of a treatment follow-up program. Free	Head, Stephen	CHIVA 2009 View online
Parent information leaflet	Download [86 Kb]	Taking medicines for HIV: A fact sheet for parents/carers looking after children	This information leaflet is for parents and carers of children starting antiretrovirals. It explains the importance of adherence, what side effects are and how to manage them, common problems that stop treatment working and hot tips to help remember to take the medicines and to help children take the medicines. Free	Hamadache, Djamel & Head, Stephen	CHIVA 2009 View online
Young people information leaflet	Download [86 Kb]	Taking medicines for HIV: A fact sheet for young people	This information leaflet is for young people starting antiretrovirals. It explains the importance of adherence, what side effects are and how to manage them, common problems that stop treatment working and hot tips to help young people remember to take the medicines and how to take them. Free	Hamadache, Djamel & Head, Stephen	CHIVA 2009 View online
Parent information leaflet	Download [541 Kb]	Where to start? Talking to children with HIV about their illness	This booklet is for people who care for children with HIV. It provides parent and carers information about why it is important to talk to children and cage appropriate suggestions of how to talk to children about HIV. It includes quotes and experiences of parents and carers. Free	Waugh, Sarah, Donaghy, Sheila, Faulknall, Wendy & Baverstock, Jacqui	St George's Paediatric HIV Team 2003
Parent information leaflet	Download [560 Kb]	Poz Kids	A lot of the information that is given to parents in the clinic can be confusing and quickly forgotten. This booklet seeks to provide some basic information about HIV infection and children that parents and carers can read at their own pace and at a time that suits them. Free	Goode, Michele, O'Meara, Margaret, Butler, Dr Karina and the Rainbow Clinic Team	Children's University Hospital Dublin 2003
Transition	Download [560 Kb]	Guidance on transition and long term follow-up services for adolescents with HIV infection acquired in infancy	This document reviews and reflects on good practice for the transition of children with perinatally acquired HIV infection through adolescence and into adulthood. It recommends resource, service and management implications when establishing adolescent and transitional care services. Free	Melvin, Diane (Chair) and the document working party	CHIVA 2005 View online
Explanation tool: post-naming		Do you know it all?	This colourful leaflet was produced by a group of HIV positive young people as a resource to educate their peers. It asks a series of questions about HIV giving factual answers in a user friendly format. Free	Pickering, Ailsa Brunton, Carolyn Oliver, Mandy	Blue Sky Trust 2009 info [at] blueskytrust [dot] org 0191 2815200
Explanation tool: pre-naming	Contact	Meet the team	This is an animated guide to the immune system for older children. It introduces the different fighter cells and the 'sleeping virus'. It explains the effect of the sleeping virus on CD4 cells and why it is important to monitor VL and CD4 and how medicines help to keep healthy. Free	Paediatric Team, Heartlands Hospital, Birmingham	Roche Roche Products Ltd
Explanation tool: pre-naming	Contact	My visit to clinic	This booklet gives and animated explanation for younger children of what to expect at their hospital clinic visit from the weighing room to the doctors examination table. It highlights the importance of regular visits and blood tests using the explanation of the 'sleeping bug'. Free	Clegg, Tina Sinclair, Marion	Octapharma
Adherence	Contact	Dreams diary	This medication diary is especially designed for young people with HIV. It gives space for young people to write about taking their medicines and space to plot CD4 and Viral Load results. In addition throughout the booklet there are pages of information and advice on a wide range of holistic subjects from bullying to relaxation. Free	Scott, Sally Dawson, Yvonne	Roche Roche Products Ltd
Young person leaflet		Condoms and it	This leaflet written by young people for young people gives information about condoms and their use. Copies available by emailing familyclinic [at] imperial [dot] nhs [dot] uk Free	CHIVA HYPNET	CHIVA HYPNET
Young person leaflet		Passing it on	This leaflet written by young people for young people gives information about HIV transmission, how it is transmitted and what makes it easier and less likely to transmit. Copies available by emailing familyclinic [at] imperial [dot] nhs [dot] uk Free	CHIVA HYPNET	CHIVA HYPNET
Young person leaflet		Accidents and it	This leaflet written by young people for young people discusses what to do in the case of a condom split - looking at emergency contraception and post exposure prophylaxis. Copies available by emailing familyclinic [at] imperial [dot] nhs [dot] uk Free	CHIVA HYPNET	CHIVA HYPNET
Young person leaflet		Contraception and it	This leaflet written by young people for young people discusses different types of contraception including a table listing types of contraception and whether they can be used with antiretrovirals. Copies available by emailing familyclinic [at] imperial [dot] nhs [dot] uk Free	CHIVA HYPNET	CHIVA HYPNET
Young person leaflet	Download [1.3 Mb]	Happy, healthy and hot: A young persons guide to their rights sexuality and living with HIV	This is a guide for young people living with HIV to help them understand their sexual rights, and live healthy, fun, happy and sexually fulfilling lives. The guide aims to give information on how young people living with HIV can increase sexual pleasure, take care of their health, practice safer sex, have children, develop strong intimate relationships and access support. Free	IPPF	IPPF 2010
Health Visitor/GP Information Pack	Download [53 Kb]	Mother to Child tranmission	This document provides a covering letter, information on prevention of mother-to-child transmission and a referal form for health visitors and GP's involved in the care of infants born to mothers with HIV. Free	Le Prevost, Marthe Williams, Amanda	Local Guideline 2010
Guidance for schools	Download [205 Kb]	Schools resource sheet	This document is a resource sheet for teaching about HIV in schools. It provides two accounts of the difficulties of living with HIV and the benefits of receiving voluntary sector support. Free	Waverly Care	Waverly Care 2010
Clinic form indeterminate follow up	Download [49 Kb]	Indeterminate infants - 6 week follow up clinic sheet	This pro forma provides a template for the 6 week clinic appointment for infants born to mothers with HIV infection. It can be used in doctor or nurse led clinics. Free	Monrose, Clare Newbould, Christina	Local Guideline 2010
Clinic form treatment	Download [41 Kb]	Starting/Switching ART - 2 week follow up clinic form	This pro forma provides a template for the 2 week clinic appointment for monitoring infants, children and YP who have started or switched ART. It can be used in doctor or nurse led clinics. Free	Monrose, Clare Newbould, Christina	Local Guidline 2010
Clinic Form Nurse Led Clinics	Download [35 Kb]	Guideline for infants requiring a diagnostic HIV test in a nurse led clinic	This document provides guidelines for the follow up of infants born to mothers with HIV infection in a nurse led clinic. Free	Monrose, Clare Newbould, Christina	Local Guideline 2010
Mother To Child Transmission	Download [33 Kb]	Transfer document from paediatrics to adolescent/adult services	This form provides a template for professionals to share of information when transfering a patient from paedaitric to adult services. Free	St Mary's Family Clinic	Local Guideline 2010
Clinic Form Treatment	Download [40 Kb]	Starting/Switching ART clinic form	This proforma provides a template for the information required before starting or switching ART. It can be used in doctor or nurse led clinics. Free	Monrose, Clare Newbould, Christina	Local Guideline 2010
Explanation tool	View	Body parts & immune system	This interactive cartoon explains the parts of the body and explains what they do in a youth friendly style.	E-Learning for kids	E-Learning for kids